ME/CFS
Severe → no benefit
Severe ME/CFS worsening despite multiple treatments, with no improvement
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Aug 2018
In their words
- Condition: ME/CFS
I have severe cfs that seems to be worsening no matter what I do
In context ↗ - At worst: Severe
I live in my bedroom, have no friends
In context ↗ - Now: No benefit
seems to be worsening no matter what I do
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 24-year-old who became ill in high school described severe CFS that was worsening despite multiple treatments. They lived in their bedroom, had no friends or emotional or financial support, and felt they had nothing to show for their life. They reported suicidal thoughts and said they did not think they could survive without a treatment soon. No treatment helped and no improvement was reported.
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Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| high school | got sick in high schoolgot sick in high schoolIn context ↗ | Not stated |
| 2018-08-29 | severe CFS worsening; suicidal thoughtsI have severe cfs that seems to be worsening no matter what I doIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
I feel like it’s not worth it to go on anymore
In context ↗