Long COVID, shower chair and chairlift, now somewhat better with plant-based diet
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Jul 2025
In their words
- Condition: Long COVID
Some time ago I heard a specialist at an online long covid convention saying that this is a thing.
In context ↗ - Now: Somewhat better
I am at 1 mg now and can get out of bed for little periods of time every day.
In context ↗
Read from 11 of their posts and comments; links to the 8 this page draws on
Summary
By September 2024 they needed a shower chair and a chairlift. A crash before then lasted months and was their worst so far, and by September 2024 they were slowly improving. In May 2025, at 1 mg of a treatment, they could get out of bed for short periods each day; they also valued occupational therapy and felt better eating plant-based.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- LDN · Helped
I have the same and feel so lucky and grateful. I am at 1 mg now and can get out of bed for little periods of time every day. It feels wonderful and also a bit scary.
In context ↗ - plantbased diet · Helped
I decided to go plantbased when I was already sick ... I feel a better eating platbased
In context ↗ - Ergotherapie (occupaional therapy) · Helped
Ergotherapie (occupaional therapy) is really nice to learn what to give your energy to and when to rest. ... I learn a lot from her.
In context ↗ - vaccine · No change
No but it didn’t make them worse either.
In context ↗ - resting more before and during period · No change
Now I try to rest even more before and during my period. But still it is worse.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2024-09-09 | crash lasting months, the worst so farMy last crash was really bad and lasted for months. The worst until now.In context ↗ | Severe | |
| 2024-09-09 | slowly climbing out of the months-long crashLuckily I am now slowly getting a little beter.In context ↗ | Severe | |
| 2025-05-04 | on 1 mg LDN, able to get out of bed for short periods each dayI am at 1 mg now and can get out of bed for little periods of time every day. It feels wonderful and also a bit scary.In context ↗ | Severe | Low-dose naltrexone |
Symptoms mentioned
Their words about their symptoms
- Temperature regulation
I have extra thick pajamas and socks on and an extra blanket.
In context ↗ - Light & noise sensitivity
Earplugs A weighted blanket. A chairlift. Noisecancellig headphones.
In context ↗
Ask Miruvor AI
Similar stories
-
Mostly housebound with ME/CFS, now a little better on Klonopin and low-dose naltrexone
Joseph, 47, in Los Angeles, developed ME/CFS in January 2024, about 18 days after a second COVID infection. He declined from mild to the bad end of moderate over six months, becoming mostly housebound. Klonopin, low-dose naltrexone, midodrine and propranolol…
-
Long COVID brain fog, somewhat better with nicotine patch and naltrexone
Pebble 25278 developed long COVID with brain fog, distorted smell, headaches, nerve pain and trouble sleeping. A quarter of a 10 mg nicotine patch restored much of their speech and thinking, and low-dose naltrexone further raised their cognitive and physical…
-
Almost bedridden with ME/CFS, now much better after a specialist regimen and pacing
A California woman infected with COVID in March 2020 was sick six months, partly recovered, then relapsed and was almost bedridden by early 2023, unable to drive and sensitive to light and noise. An out-of-pocket ME/CFS specialist regimen of LDN, Abilify,…
-
Bedbound with ME/CFS, now housebound and somewhat better with rest and low-dose naltrexone
After about 1.5 years of ME/CFS with push–crash cycles, they became bedbound for two months in mid-2026, getting up only for the bathroom. They improved slowly with four months of rest, low-dose naltrexone, a beta-blocker, compression and salt/fluids. By…