Miruvor
Sign up
ME/CFS No benefit

ME/CFS fatigue and crumbling identity, no benefit from coffee or medication

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Jul 2026
In their words
  • Condition: ME/CFSThe fatigue is strange it give me this feeling that i don't have the energy to even be myself In context ↗
  • Now: No benefitThe fatigue is strange it give me this feeling that i don't have the energy to even be myself and i live in state of nonexistence In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

Request to remove this story

Summary

Hare 34196 described a fatigue that left them without the energy to be themselves, living in a state of nonexistence, with their identity crumbling. They said 1.5 litres of cold brew or black coffee made them feel like themselves again. Lamotrigine 200 mg, prescribed by their doctors, and aripiprazole over 15 mg had also left them extremely tired and drained. No onset, duration or outcome was described.

Ask Miruvor AI

Asking aboutHare 34196’s story

What they tried

Also tried

cold brew or black coffee· Helpedlamotrigne· Worseapropriprozol· Worse
Their words about each treatment
  • lamotrigne · Worseit is known for its seductive effect, it kinda makes you feel extremely tired both to your mental and physical health In context ↗
  • apropriprozol · Worseover 15mg it also makes you want to sleep and drains your energy trust me i am speaking from experince In context ↗
  • cold brew or black coffee · Helpedwhen i used to drink one and half liter of cold brew or black coffee i feel i am my self again like if my energy when it is hight i na do almost everything In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—fatigue that takes away the energy to be themselvesThe fatigue is strange it give me this feeling that i don't have the energy to even be myself In context ↗
2026-07-20still describes fatigue and loss of sense of self; coffee briefly restores itwhen i used to drink one and half liter of cold brew or black coffee i feel i am my self again In context ↗

Adverse events

  • “the Same EXACT thing happened when my doctors prescriped lamotrigne at a dose of 200mg ... it kinda makes you feel extremely tired both to your mental and physical health” In context ↗ Side effects
  • Low-dose Abilify / aripiprazole“for the apropriprozol like i said over 15mg it also makes you want to sleep and drains your energy” In context ↗ Side effects

Ask Miruvor AI

Asking aboutHare 34196’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime