Mostly bedridden and housebound with ME/CFS, now much better on new medications
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5 years
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
although they can never fully appreciate what living with cfs is like
In context ↗ - At worst: Severe
5 years in bed mostly and house bound
In context ↗ - Now: Much better
I'm hopefully i will just stay here which is around 80% which I am truly grateful for.
In context ↗ - Began after: nothing they could name
you can improve as arbitrarily as you got sick in the first place
Read from 20 of their posts and comments; links to the 19 this page draws on
Summary
An Australian was mostly bedridden and housebound for the first five years of ME/CFS, then improved enough by about 2019 to return to some part-time work. They report roughly 80% of normal function on new medications in mid-2024, after a dip earlier that year, and call THC vape a game changer for sleep, though they still wake at night.
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What they tried
What they credit
Also tried
Their words about each treatment
- metagenics calm x (mostly magnesium) · Helped
I take metagenics calm x (mostly magnesium) which helps
In context ↗ - melatonin · Helped
Trying some stronger doses of melatonin snd cbti which is helping a little.
In context ↗ - valerian root · Helped
These products are good and help a good amount
In context ↗ - sleep hygiene · Helped
I understand how good sleep hygiene and exercise (when I can manage it) helps
In context ↗ - stretching · Helped
Yeah I like to do stretching whenever I can and yes it does help.
In context ↗ - cold showers · Helped
Cold showers helped me for a period of time. I still do it in the summer.
In context ↗ - exercise · Helped
Exercise can help me, but if i push too much it causes crashes.
In context ↗ - diets · No change
after many years of failed diets
In context ↗ - intermittent fasting · Helped
Intermittent fasting is helping me like others have stated.
In context ↗ - vagus nerve stimulation device · Helped
I purchased it and tried in for 2 months initially and still occasionally try it. I think it may have a small effect on my energy levels, but not enough to recommend.
In context ↗ - naps · Worse
Would love to but everytime throws my sleep rhythm into a spin.
In context ↗ - lemborexant · Helped
Not as many wakes after taking lemborexant, Gabapentin and thc
In context ↗ - valium / Diazepam · Helped
regular valium / Diazepam, the latter of which is good on occasion
In context ↗ - thc vape · Helped
I've just started thc vape and only use it 1-2 times a week and it helps relax my body and improve sleep
In context ↗ - CBD oil · Helped
CBD oil does help me sometimes but it's sometimes not noticeable for me
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2014 (approx.) | CFS onset; mostly bedridden and housebound for the first five years5 years in bed mostly and house boundIn context ↗ | Severe |
| after five years (~2019) | improved enough to return to some part-time work, with regular crashesIt took me five years of being bed and house bound before I was able to get back to some form of part time work.In context ↗ | Mild |
| 2024-04 | wheels fell off after a period of work and regular crashesvery recently the wheels have fallen offIn context ↗ | Not stated |
| 2024-07 | more stable on new medications, around 80% of normalThis year on some new meds more stableIn context ↗ | Mild |
| 2025-05 | THC vape found to help sleep and night-time anxietydiscovering THC after about 9 years of CFS has been a bit of a game changerIn context ↗ | Mild |
| 2026-09 | still using THC vape and CBD oil for sleepThc vape calms me enough to sleepIn context ↗ | Mild |
Adverse events
- “I also felt psychologically abused by my GET physio.” In context ↗ Mood or psychiatric effects
- Naps“Would love to but everytime throws my sleep rhythm into a spin. Toooo risky” In context ↗ Other
- Cannabis (THC, marijuana)“with only a few times I smoke a bit too much and maybe negatively affect my normal sleep cycle” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Exercise can help me, but if i push too much it causes crashes.
In context ↗ - Anxiety & low mood
Physical anxiety at night
In context ↗ - Gut problems
I did slowly fix my gut issues
In context ↗
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