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Long COVID No benefitIll for 23 monthsNeeds ongoing treatment

Long COVID tachycardia and vasospasms, now stable on medication with no improvement

Condition
Long COVID
At worst
Not stated
Ill for
23 months
Last post
Nov 2022
In their words
  • Condition: Long COVIDPrior to covid, I had chronically low blood pressure. In context ↗
  • Now: No benefitI'm the same with my symptoms being managed by a major medication regiment. ... this is likely my new normal. In context ↗
  • Began after: COVIDPrior to covid, I had chronically low blood pressure. In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

Developed long COVID in about December 2020. Ivabradine (Corlanor), started in mid-2021, better controlled their tachycardia, though their blood pressure rose and they gained weight; metoprolol and Isordil were stopped over low blood pressure and suspected worsening of vasospasms. By late 2022, one month short of two years ill, they were stable on a major medication regimen, which their rheumatologist called their new normal.

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What they tried

Their words about each treatment
  • metoprolol · WorseI was on a 100mg a day and I was having low diastolic blood pressure. ... Unfortunately, metoprolol didn't work for me.
  • Isordil · Not saidThe cardiologist took me off the metoprolol (100mg a day) and Isordil (20mg a day) suspecting that it was making the vasospasms worse. In context ↗
  • Corlanor · HelpedThe tachycardia is better controlled with the Corlanor, but I've experienced weight gain since starting the medication. In context ↗
  • Losartan · Not saidI've since switched to Corlanor and Losartan. Losartan for the high blood pressure that I now have since starting the Corlanor. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
onsetBecame ill with long COVIDOne month shy of two years since first getting sick In context ↗
2021-07-12Switched to ivabradine (Corlanor); tachycardia better but blood pressure roseCorlanor seems to work, but now I have high blood pressure. In context ↗Ivabradine
2022-11-04Stable with symptoms managed by a major medication regimen, called their new normalI'm the same with my symptoms being managed by a major medication regiment. In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationsThe tachycardia is better controlled with the Corlanor In context ↗
  • POTS & dysautonomiaWould go from hypotension to hypertension all one day. In context ↗

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