ME/CFS
Moderate → no benefit
Exhausted all their life, worse with ME/CFS, and fatigue remains
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- lifelong
- Last post
- Dec 2017
In their words
- Condition: ME/CFS
All my life, I always feel exhausted. Like, I can say with confidence that I'm always exhausted.
In context ↗ - At worst: Moderate
It's so hard to get off the bed and even typing is hard.
In context ↗ - Now: No benefit
All came out normal. But I've been sicker and weaker.
In context ↗ - Began after: nothing they could name
All my life, I always feel exhausted.
In context ↗
Summary
Coast 53878, 22, has felt exhausted all their life and became worse in 2017 after taking two dance classes, ending up lying on the floor and typing lying down; a day of rest bought only 12-15 hours of normal activity. Blood sugar dropped requiring ambulance trips twice in one week, with one reading of 2.3 and no cause found, and MRI, CT and gastroscopy were normal. By their last comment the fatigue remained, and they had said walking required repeated stops.
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What they tried
Also tried
reduced activity levels and rest· No changelow carb diet· No changedance classes· Worseless processed foods· Not said
Their words about each treatment
- reduced activity levels and rest · No change
I reduced activity levels in college ... However, the exhaustion was still there
In context ↗ - dance classes · Worse
This year, I picked up 2 dance classes ... I started feeling a lot more exhausted
In context ↗ - less processed foods · Not said
ate a lot less processed foods
In context ↗ - low carb diet · No change
I also tried the low carb diet but it hasn't been working out.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | lifelong exhaustion, reduced activity in collegeAll my life, I always feel exhausted.In context ↗ | Mild |
| 2017 | much more exhausted after taking two dance classesI started feeling a lot more exhausted, got home lying on the floor for 10 minutes before picking myself up and move myself to the bed.In context ↗ | Moderate |
| 2017-12-20 | semester over, still rough; fatigue unchangedIt's been normal but the fatigue hasn't gone away. ... walking requires making stops repeatedly. | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
resting up for a day ... will only get me through about 12 (or 15 tops) hours of normal activities the next day
In context ↗ - Muscle weakness
But I've been sicker and weaker.
In context ↗ - Anxiety & low mood
I had a history of mental illnesses, but they haven't been impairing me
In context ↗