ME/CFS
Mild → no benefitIll for 3 years
Exhausted and unable to do things as before; ME/CFS still undiagnosed, no improvement
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 3 years
- Last post
- Mar 2022
In their words
- Condition: ME/CFS
i’m new to this illness, can’t do anything the way i use to before
In context ↗ - At worst: Mild
i work 40hrs a week ... i’m still having to call out at least once a week from exhaustion
In context ↗ - Now: No benefit
every day and week i struggle and have been for the last 3 or so years and it seems like it’s getting worse
In context ↗ - Began after: nothing they could name
every day and week i struggle and have been for the last 3 or so years
In context ↗
Summary
After about three years of struggling that was getting worse, at 29 they were working 40 to 46 hours a week and calling out at least once a week from exhaustion, still undiagnosed while awaiting a sleep study. Blood work was normal and doctors said it was probably depression and anxiety, prescribing two medications that made their mood slightly more stable but did nothing for their other symptoms. They felt scared, a little hopeless and unable to do things as before.
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What they tried
Also tried
two meds· Helpedcaffeine· No change
Their words about each treatment
- caffeine · No change
how can i drink 600mg of caffeine and STILL hardly be able to stay awake for more than 2 hours?
In context ↗ - two meds · Helped
here take these two meds that make your moods slightly more stable but does nothing for any of your other issues
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| ~2019 | gradual onset of exhaustionevery day and week i struggle and have been for the last 3 or so yearsIn context ↗ | Not stated |
| 2022-03-23 | working 40-46 hours a week, calling out weekly, still undiagnosedi’m still having to call out at least once a week from exhaustionIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
like how can i drink 600mg of caffeine and STILL hardly be able to stay awake for more than 2 hours?
In context ↗ - Anxiety & low mood
im so exhausted and scared and a little hopeless
In context ↗