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ME/CFS Outcome unclear

ME/CFS with no overall change; diet was horrid, IBS pain med helps a little

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Apr 2026
In their words
  • Condition: ME/CFSI tried this diet before I got diagnosed In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

A Reddit user in ME/CFS forums, diagnosed at some point, described treatments rather than recovery. They tried a diet before diagnosis and called it horrid: keto flu, constant cooking and no joy. They take 10 mg daily for IBS pain, which helps a little but higher doses leave them feeling like a zombie, and Slynd progesterone, planning continuous active pills. No overall change in their ME/CFS was reported.

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What they tried

Their words about each treatment
  • keto diet · WorseApart from the horrendous keto flu when I first started ... It was horrid and I felt horrid. A hard no. In context ↗
  • amitriptyline · HelpedI take 10mg per day for IBS pain. It helps a little. In context ↗
  • Slynd · Not saidYeh I am taking Slynd which is just progesterone. Plus I'm soon going to trial not taking the placebo pills and just continuously taking the active pills to see if that helps too. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
onsetME/CFS onset, before diagnosisbefore I got diagnosed In context ↗
2026-04-08still taking amitriptyline for IBS pain and Slynd progesterone; no overall change reportedI am taking Slynd which is just progesterone In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms

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