Decades of low energy and crashes with ME/CFS, a little better after staying active
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- decades
- Last post
- Aug 2025
In their words
- Condition: ME/CFS
I am unclear if I even have CFS but strongly suspect I may after decades of abnormal human energy
In context ↗ - At worst: Mild
I often have to go very easy for the rest of the day and sometimes straight up a few hours in bed.
In context ↗ - Now: Somewhat better
30 mins seems to be my limit for any strenuous activity but I would have said 20 not long ago
In context ↗ - Began after: nothing they could name
after decades of abnormal human energy, dizziness and lightheadedness when pushing myself
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
After decades of abnormally low energy, dizziness and lightheadedness on exertion, and crashes lasting a few hours to a day after overdoing it, they suspected they might have CFS but were unsure. They strength-trained about twice a week for 30 minutes with rests, often needing the rest of the day easy and sometimes a few hours in bed. Their tolerance for strenuous activity rose from about 20 to 30 minutes as they stayed active, and they were hopeful.
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What they tried
What they credit
Their words about each treatment
- strength training · Helped
I do strength training usually twice a week ... the more regularly I stay active the wider the envelope seems to get so I’m hopeful.
In context ↗ - protein · Helped
with proper protein the body does respond well
In context ↗
Approaches: Diet · Exercise and activity
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| decades before 2025 | decades of low energy, dizziness and mild crashes after overdoing itafter decades of abnormal human energy, dizziness and lightheadedness when pushing myselfIn context ↗ | Mild | |
| 2025-08-04 | stamina for strenuous activity grew from about 20 to 30 minutes with regular strength training30 mins seems to be my limit for any strenuous activity but I would have said 20 not long agoIn context ↗ | Mild | Strength training |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
what I would call PEM is a few hours or a day at worse
In context ↗ - POTS & dysautonomia
dizziness and lightheadedness when pushing myself
In context ↗
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