ME/CFS
Severe → no benefitIll for 13 years
ME/CFS fatigue and body heaviness, still seeking cause; no lasting benefit from MDMA
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 13 years
- Last post
- May 2024
In their words
- Condition: ME/CFS
Testing for causes of fatigue?
In context ↗ - At worst: Severe
As someone who would spend most of the day laying down and barely moving
In context ↗ - Now: No benefit
These are all fairly basic and there are many ways to increase them (I’ve tried) but nothing is able to nullify my fatigue the way MDMA does.
In context ↗ - Began after: nothing they could name
Since age ~12 I’ve felt like my legs are ‘stuck in mud’
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 25-year-old man described fatigue and body heaviness since about age 12, tiring quickly from physical and mental tasks and often lying down most of the day. He declined social outings and could stay home for weeks or months; he also had obstructive sleep apnea and an ADHD diagnosis. He was still seeking tests and a remediable cause. MDMA temporarily removed his fatigue, but he called the effect unsustainable.
Ask Miruvor AI
What they tried
Also tried
MDMA· Helped a lotways to increase serotonin, norepinephrine and dopamine· No change
Their words about each treatment
- MDMA · Helped a lot
It always made my physical fatigue go away.
In context ↗ - ways to increase serotonin, norepinephrine and dopamine · No change
nothing is able to nullify my fatigue the way MDMA does
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age ~12 | fatigue and body heaviness beganSince age ~12 I’ve felt like my legs are ‘stuck in mud’In context ↗ | Moderate |
| 2024-05-04 | still fatigued, usually housebound, seeking testsI get tired very quickly from both physical and mental tasks ... I could happily stay away from others and not leave the house for weeks/monthsIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I have obstructive sleep apnea but the NHS is slow
In context ↗ - Muscle weakness
my entire body feels heavy and sluggish
In context ↗