Miruvor
Sign up
Long COVID No benefitIll for 5 years

Long COVID for five years, lower after reinfection, no benefit from tried treatment

Condition
Long COVID
At worst
Not stated
Ill for
5 years
Last post
Oct 2026
In their words
  • Condition: Long COVIDafter 5 years of Long COVID In context ↗
  • Now: No benefitUnfortunately, my baseline has recently worsened after getting reinfected, and I'm hoping to get back to where I was before. In context ↗
  • Began after: COVIDafter 5 years of Long COVID In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

Request to remove this story

Summary

Lagoon 98502 has had long COVID for five years and tried something they felt nothing from. Their baseline dropped recently after a reinfection, leaving them below their previous level and hoping to get back there. Their sleep-wake rhythm has been disrupted since they became ill. They read, crochet and watch TV while resting but are unsure whether that counts as proper rest.

Ask Miruvor AI

Asking aboutLagoon 98502’s story

What they tried

Their words about each treatment
  • Meldonium · No changeI didn't feel anything from it In context ↗
  • resting · Not saidafter 5 years of Long COVID, I still feel like I haven't figured it out In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
about 2021 (five years before October 2026)onset of long COVIDafter 5 years of Long COVID In context ↗
recently, before 2026-10-11baseline worsened after a reinfectionmy baseline has recently worsened after getting reinfected, and I'm hoping to get back to where I was before In context ↗
2026-10-13still below their old baseline, sleep rhythm disrupted, trying to restSince having LC it's hard for me to be calm. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsMy sleep-wake rhythm has been disrupted since being I'll In context ↗

Ask Miruvor AI

Asking aboutLagoon 98502’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime