ME/CFS
Severe → somewhat betterIll 5 years before improving or writing
Bedridden then housebound with ME/CFS, now somewhat better and managing short walks
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5 years
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
future and relationships after me/cfs
In context ↗ - At worst: Severe
from house to bed to housebound
In context ↗ - Now: Somewhat better
i came back to have somewhat of energy
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user with ME/CFS who met all diagnostic criteria spent over five years going from being at home to bedridden to housebound, then regained some energy after trying various things. They now manage short walks, though talking during them still exhausts them. A new relationship begun during this partial recovery collapsed after they lacked energy for sex, leaving them facing a lost career and reduced motivation.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | onset of ME/CFSi fulfilled all diagnostic criteriaIn context ↗ | Not stated |
| — | in bed, then houseboundwent over 5 years from house to bed to houseboundIn context ↗ | Severe |
| 2026-08-08 | regained some energy, able to take short walksi came back to have somewhat of energyIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
from my small walks by talking (which still exhausted and caused problems but not 2much)
In context ↗