ME/CFS
Severe → somewhat better
Bedbound with ME/CFS fatigue, now somewhat better and learning to tell fatigue from freeze response
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Apr 2025
In their words
- Condition: ME/CFS
when the fatigue is from chronic fatigue or from a freeze
In context ↗ - At worst: Severe
who was bed bound
In context ↗ - Now: Somewhat better
recovering from severe fatigue
In context ↗ - Began after: stress or burnout
my cf is from CPTSD and emotions repression
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Quail 82707 wrote that they had been bed bound with severe fatigue and were recovering, still learning to tell chronic fatigue apart from a freeze response. They said their chronic fatigue came from CPTSD and emotional repression and worsened after physical overexertion or chronic mental tension such as anxiety and fear. Fatigue from the condition felt like being unable to move and 'proper depleted'; freeze fatigue was similar, but they still felt wired for connection as a clue.
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What they tried
Their words about each treatment
- speaking to my psych · Helped
When I have severe fatigue from a freeze and I speak to my psych I can come out of it
In context ↗ - sitting out in the sun · Helped
from connection, sitting out in the sun etc.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | bed bound with severe fatiguesomeone recovering from severe fatigue who was bed boundIn context ↗ | Severe |
| — | recovering, able to see their psych and sit out in the sun to come out of a freezeI’m still learning how to provide safety to myself to come out on my own it will take timeIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
cf is more when I’ve over exerted myself from physical activities or mental chronic patterns of tension
In context ↗ - Muscle weakness
it’s like I cannot move and I feel proper depleted
In context ↗ - Anxiety & low mood
mental chronic patterns of tension eg anxiety and fear
In context ↗