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Long COVID Severe → somewhat betterIll 18 months before improving or writing

Long COVID cramps, couldn't sit or stand long, some improvement with smoking, candesartan

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
18 months
Last post
Sep 2023
In their words
  • Condition: Long COVIDHaven't heard of this before, I am in 1.5 years now. In context ↗
  • At worst: Severei had cramps all the time and couldn sit or stand upright for longer In context ↗
  • Now: Somewhat betterBut can confirm I feel a lot better! Like really a lot. In context ↗
Read from 4 of their posts and comments; links to the 3 this page draws on

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Summary

They had long COVID for about 1.5 years. They had cramps all the time and could not sit or stand upright for long. Candesartan helped the cramps at first, and they ate once a day because food made them feel worse. Occasional smoking, heavier in a bad week, made them feel a lot better.

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Asking aboutTern 15747’s story

What they tried

Their words about each treatment
  • candesartan · Helpedcandesartan helped me in the beginning a lot! i had cramps all the time and couldn sit or stand upright for longer In context ↗
  • eating only once a day · Helpedas long as i don´t eat i feel better. So i eat only once a day and mostly only one thing so i can check the effects In context ↗
  • smoking (cigarettes) · Helped a lotI had a bad week and smoked :( a lot, since I was already in "ff.. It" mode. But can confirm I feel a lot better! Like really a lot. In context ↗

Approaches: Diet

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
2022long COVID onset, about 1.5 years before their last postI am in 1.5 years now In context ↗
—cramps eased and they could sit and stand upright for longercandesartan helped me in the beginning a lot! i had cramps all the time and couldn sit or stand upright for longer In context ↗Candesartan (Atacand)
2023-09a bad weekI had a bad week and smoked :( a lot In context ↗
2023-09-26felt a lot better after smokingBut can confirm I feel a lot better! Like really a lot. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Muscle weaknessi had cramps all the time and couldn sit or stand upright for longer In context ↗
  • POTS & dysautonomiacouldn sit or stand upright for longer In context ↗
  • Gut problemsas long as i don´t eat i feel better. So i eat only once a day In context ↗

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