Long COVID
Moderate → no benefitIll for 3 years
Long COVID with extreme Raynaud's, unable to work three years, no improvement
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 3 years
- Last post
- Sep 2025
In their words
- Condition: Long COVID
I have the same ‘thing’ but it includes my feet, hands, arms and legs.
In context ↗ - At worst: Moderate
I haven’t been able to work for 3 years
In context ↗ - Now: No benefit
since 2022 it has been extreme
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
This person described hands, feet, arms and legs changing colour from white to red to purple after hand-washing or showering and calming after about an hour lying down; they had been told it was Raynaud's, which they had had since 2010 and which had been extreme since 2022. They had been unable to work for three years and relied on a spouse's income. Anxiety and depression were said to be controlled by medication.
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What they tried
Also tried
Their words about each treatment
- medication · Helped
diagnosed with anxiety which is successfully controlled with medication for 15 years
In context ↗ - medication · Helped
depression which I also have and have been successfully treated with medication for 30 years
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | Raynaud's became extreme; later unable to worksince 2022 it has been extremeIn context ↗ | Moderate |
| 2025-09-30 | still unable to workI haven’t been able to work for 3 yearsIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
it gets crazy changing colors from white to red then purple and calms down after an hour or so if I lay down
In context ↗ - Anxiety & low mood
I’ve been diagnosed with anxiety which is successfully controlled with medication for 15 years
In context ↗