ME/CFS
Severe → no benefit
Agitated, unable to rest and feeling tied to bed with ME/CFS, no improvement
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Apr 2023
In their words
- Condition: ME/CFS
if I'm not careful I'll just make everything worse for the next days
In context ↗ - At worst: Severe
It used to be a fantasy of mine to be tied to the bed 24/7. But now I'm practically living that without any of the fun.
In context ↗ - Now: No benefit
Everything sucks.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
In April 2023 Sandpiper 79516 described feeling at their worst: agitated, unable to rest, and practically living a fantasy of being tied to the bed 24/7, without the fun. They said their sex life had once been much more involved and that they had to be careful because overdoing it would make everything worse for the next days. No treatment, onset date or overall course was given.
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Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if I'm not careful I'll just make everything worse for the next days
In context ↗