ME/CFS
Moderate → no benefitIll for 1 year
ME/CFS with extreme tiredness and much of the day lying down, no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 1 year
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
one year suffering from this extreme tiredness
In context ↗ - At worst: Moderate
I can earn a living with about an hour of work a day ... I usually need to lie down again
In context ↗ - Now: No benefit
aside from answering a few emails, I am doing almost nothing
In context ↗ - Began after: nothing they could name
one year suffering from this extreme tiredness
In context ↗
Summary
A 59-year-old self-employed person described about a year of extreme tiredness, down from three hours of daily training at 53 to roughly an hour of work and much of the day lying down. A 20 mg dose of prednisone, taken for asthma, gave markedly more energy and more normal function. A sleep study found only very mild sleep apnoea, and usual sleep was five hours or less.
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What they tried
Also tried
Their words about each treatment
- prednisone · Helped
I take prednisone for asthma, and I have noticed that when I take 20 mg, I have significantly more energy. I can work, clean the house, shop, and function much more normally.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2025 | extreme tiredness began a year before the postone year suffering from this extreme tirednessIn context ↗ | Moderate |
| 2026-10-02 | still doing almost nothing, lying down much of the dayaside from answering a few emails, I am doing almost nothingIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Otherwise I usually sleep about 5 hours or less.
In context ↗