Long COVID
Severe → no benefitIll for 6 years
Severe long COVID with daily vomiting, no improvement from antihistamines
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 6 years
- Last post
- Mar 2026
In their words
- Condition: Long COVID
For six years now, I have been living with Long Covid.
In context ↗ - At worst: Severe
My symptoms are severe ... I have been vomiting every single day for six years.
In context ↗ - Now: No benefit
After that appointment, I had a terrible relapse. For an entire month I could barely move.
In context ↗ - Began after: COVID
For six years now, I have been living with Long Covid.
In context ↗
Summary
Six years into long COVID she described severe symptoms, including vomiting every day, and said she felt abandoned by family and as if no one cared. A trip of over nine hours, alone, to a medical appointment left her in a relapse in which she could barely move for a month. She could not tolerate low-dose naltrexone at 0.25 mg, and very high doses of antihistamines for a misdiagnosed mast cell problem gave no improvement.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- antihistamines · No change
I took extremely high doses of antihistamines with zero improvement.
In context ↗ - LDN · Worse
I tried the LDN at a very low dose of 0.25 and I did not tolerate the medication.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | long COVID beganFor six years now, I have been living with Long Covid.In context ↗ | Not stated |
| 2022 | Omicron infection, after which pelvic symptoms and PGAD beganit all started after the 2022 Omicron infectionIn context ↗ | Not stated |
| — | relapse after a nine-hour trip alone to a medical appointmentAfter that appointment, I had a terrible relapse. For an entire month I could barely move.In context ↗ | Severe |
| 2026-03-08 | still severely ill, vomiting daily, isolatedMy symptoms are severe, yet I feel like no one pays attention anymore.In context ↗ | Severe |
Adverse events
- Low-dose naltrexone“I tried the LDN at a very low dose of 0.25 and I did not tolerate the medication.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Gut problems
I have been vomiting every single day for six years.
In context ↗ - Post-exertional malaise
After that appointment, I had a terrible relapse. For an entire month I could barely move.
In context ↗ - Anxiety & low mood
A deep anger appeared, an aggressiveness I never had before.
In context ↗ - Light & noise sensitivity
The smallest noise, the slightest tension, a careless word my nervous system reacts instantly.
In context ↗