ME/CFS for ten years, somewhat better after diet changes
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 10 years
- Last post
- Sep 2024
In their words
- Condition: ME/CFS
I’ve had CFS for ten years now
In context ↗ - Now: Somewhat better
When I started feeling better, I tried to introduce everything back in over time.
In context ↗
Summary
The user had had CFS for ten years by September 2024. Soon after diagnosis they changed their diet, trying paleo and cutting out dairy, gluten and other foods they did not tolerate; they said it really helped and later reintroduced foods as they felt better. They also mixed tea tree, rosemary and lavender oils into their shampoo and conditioner, which helped hair growth. They were still investigating possible narcolepsy.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- paleo diet · Helped
I tried a paleo diet for a while; cut out dairy, gluten, and other foods that my body didn’t do well with and it really helped.
In context ↗ - tea tree, rosemary and lavender essential oils · Helped
I mixed them into my shampoo and conditioner each time i showered and it especially helped with hair growth
In context ↗
Approaches: Diet
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2014 | onset of CFSI’ve had CFS for ten years nowIn context ↗ | |
| when I was first diagnosed | changed diet and felt betterI tried a paleo diet for a while; cut out dairy, gluten, and other foods that my body didn’t do well with and it really helped.In context ↗ | Elimination diets (other) |
| 2024-09-19 | still has CFS, investigating possible narcolepsyam now figuring out that i may also have narcolepsyIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Hair loss
When this happened to me i started trying tea tree, rosemary and lavender essential oils.
In context ↗
Ask Miruvor AI
Similar stories
-
Unable to walk around house with long COVID, much better after pacing and antihistamines
A Canadian man with long COVID for about three years was unable to walk around the house for the first two years, with constant migraines, brain fog and PEM. From year three, pacing, rest, stress reduction, H1/H2 antihistamines, hydroxyzine for sleep,…
-
Bedbound for months with ME/CFS, now much better after vein surgeries and physical therapy
A 29-year-old man's long COVID began in mid-2021 after his second Pfizer dose and worsened for three years; an early-2024 presumed reinfection left him 95% bedbound for months, and he has been unable to work for over three years. Vein surgeries, compression…
-
Long COVID with POTS and brain fog, improved then relapsed, now mostly housebound
A teenager developed POTS, vertigo and brain fog after COVID in 2022, then had a near two-year remission. A reinfection in late 2024 left her disabled, and further infections plus a decline into ME-type crashes with light and sound sensitivity made her…
-
Bedbound at worst with ME/CFS after COVID, now somewhat better with pacing
A person in New Zealand became ill with COVID around mid-2022. They worsened for 14 months to severe and bedbound, and are not working. Pacing, an electric wheelchair, mast-cell and arthritis drugs, and vitamin D later brought them to mild (moderate side of…