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ME/CFS Mild → relapsed

ME/CFS: month-long above-average energy waves, then crashes again

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill before improving or writing
Not stated
Last post
Jul 2023
In their words
  • Condition: ME/CFSEvery 3-6months I string together about a month of above average stamina and energy. Still ridiculous fatigue but, any improvement is better. In context ↗
  • At worst: MildI do as much exercise that I can muster until I crash. In context ↗
  • Now: RelapsedI do as much exercise that I can muster until I crash. Basically I make as much sudden progress I can to last me until next time. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Posting on an ME/CFS forum in July 2023, they described riding out waves: every three to six months they string together about a month of above-average stamina and energy, though fatigue remains "ridiculous". They eat simple, clean meals and do as much exercise as they can until they crash, banking progress to last until the next wave. No onset or overall outcome is stated.

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What they tried

Their words about each treatment
  • eat as clean as humanly possible · Not saidI eat as clean as humanly possible. Simple meals. A pack of lunch meat. Pre made salads. In context ↗
  • as much exercise that I can muster · Not saidAnd I do as much exercise that I can muster until I crash. Basically I make as much sudden progress I can to last me until next time. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseAnd I do as much exercise that I can muster until I crash. In context ↗

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