ME/CFS
Outcome unclear
ME/CFS crashes demand a dark room; a bedside notebook eases the trapped feeling
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
that dark room protocol is exactly what my body demands during a crash too
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Fox 42161 describes crashes where their body demands a dark room protocol, and says pushing even a little during a crash just extends the misery. They keep a notebook by the bed to scribble thoughts without a screen, which helps with the trapped feeling when the brain wants to do things the body can't. No onset, duration, treatments or level of function are described.
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What they tried
Also tried
dark room protocol· Helpednotebook by the bed· Helped
Their words about each treatment
- dark room protocol · Helped
that dark room protocol is exactly what my body demands during a crash too. sometimes the only way out is through and pushing it even a little just extends the misery
In context ↗ - notebook by the bed · Helped
it's not a fix but it helps with the trapped feeling when your brain wants to do things your body can't
In context ↗
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
pushing it even a little just extends the misery
In context ↗