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Condition not stated Mild → no benefitIll for 2 years

Constant fatigue and lightheadedness for two years; benzodiazepines tried

Condition
Condition not stated
At worst
Mild (working or studying, with limits)
Ill for
2 years
Last post
Jun 2024
In their words
  • Condition: Condition not statedit’s impossible to tell if I have PEM In context ↗
  • At worst: Mildafter the Ativan about an hour later I was able to walk without feeling fatigued In context ↗
  • Now: No benefitI’ve been feeling fatigue and lightheaded for 2 years straight In context ↗
  • Began after: nothing they could nameI can’t really pinpoint a viral onset besides Covid but, I was already experiencing the issues prior to getting it.
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Tulip 49396 had been fatigued and lightheaded continuously for two years by mid-2024 and went to the emergency room for fatigue and a low heart rate; a Covid infection came after symptoms had already started. Doctors suggested anxiety was the cause. An Ativan given in the ER let them walk without fatigue and feel refreshed an hour later, and they later said benzodiazepines were the only thing that eased their symptoms.

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What they tried

Their words about each treatment
  • benadryl · Not saidthey sent me off with a heavy dose of benadryl and later an Ativan In context ↗
  • Ativan · Helpedafter the Ativan about an hour later I was able to walk without feeling fatigued and just generally felt totally okay and refreshed In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2022constant fatigue and lightheadedness beganI’ve been feeling fatigue and lightheaded for 2 years straight In context ↗Mild
2024-06-19after Ativan in the ER could walk without fatigue and felt refreshedafter the Ativan about an hour later I was able to walk without feeling fatigued and just generally felt totally okay and refreshed In context ↗Near normalLorazepam (Ativan)
2024-06-24still symptomatic, benzodiazepines the only thing that eased symptomsbenzos are unfortunately the only thing that seem to ease my symptoms In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodmy extreme anxiety (that I do have) In context ↗
  • POTS & dysautonomiaI’ve been feeling fatigue and lightheaded for 2 years straight In context ↗
  • Heart symptoms & palpitationsWent to the ER for fatigue related issues/low heart rate In context ↗

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