ME/CFS
Somewhat betterNeeds ongoing treatment
ME/CFS with PEM, somewhat better with supplements and strict diet
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Feb 2023
In their words
- Condition: ME/CFS
Diet has definitely improved certain symptoms, but my CFS still progressed.
In context ↗ - Now: Somewhat better
It's other things that have stopped it progressing for me.
In context ↗
Summary
The Reddit user has ME/CFS and still gets PEM. A long-standing low-carb, grain-free and dairy-free diet, plus paleo-keto, AIP and low-thiol diets tried under a nutritionist and doctor, improved some symptoms but the illness still progressed. They say other things stopped the progression for them, and that supplements and medications help and a strict diet has a massive impact on how they feel. No level of function or recovery is described.
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What they tried
Also tried
animal protein (grass-fed red meat)· Helpedlow carb, no grain, no dairy; paleoketo, AIP, low thiol· Helpedlow carb, no grain, no dairy; paleoketo, AIP, low thiol· Helped
Their words about each treatment
- animal protein (grass-fed red meat) · Helped
Can't function without animal protein (wish I could). Grass fed red meat especially.
In context ↗ - low carb, no grain, no dairy; paleoketo, AIP, low thiol · Helped
I've been low carb, no grain, no dairy for years ... Diet has definitely improved certain symptoms, but my CFS still progressed.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | ME/CFS, onset not describedI've been low carb, no grain, no dairy for years (Dairy free since 2013, GF since 2017)In context ↗ |
| 2022-06-01 | animal protein and diet help; can't function without itCan't function without animal protein (wish I could). Grass fed red meat especially.In context ↗ |
| 2023-02-05 | CFS progressed despite strict dietDiet has definitely improved certain symptoms, but my CFS still progressed.In context ↗ |
| 2023-02-05 | other supplements and medications stopped the progression; strict diet still neededIt's other things that have stopped it progressing for me.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I still get PEM.
In context ↗