Long COVID
Outcome unclearIll for 6 yearsNeeds ongoing treatment
Long COVID with years of chronic head pain; meds ease symptoms, no overall recovery
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- 6 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
Tachacardia doing nothing at the long covid clinic.
In context ↗ - Began after: COVID
My course was: Tachacardia doing nothing at the long covid clinic.
- Says they never had: Tinnitus
The audiologist and ent ruled I didn’t have tinnitus
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
Swan 14071 has long COVID; chronic head pain has been their main problem for about six years, alongside MCAS, POTS and nutcracker syndrome. An iliac vein stent causes pain that low-dose naltrexone controls, and they say they cannot go without it. MCAS is partly managed with Xolair, ketotifen, Zyrtec and famotidine, while acetazolamide, diclofenac powder and prednisone ease the head pain. No overall recovery is described.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- illiac vein stent · Not said
Next thing up was illiac vein stent. ... My body is hypersensitive so the stent causes me pain unless I take LDN.
In context ↗ - LDN · Helped
It helps my stent inflammation. I can’t go without it and no doctor wants to try alternatives so I’m stuck.
In context ↗ - Xolair · Helped
My MCAS has been somewhat managed by Xolair, Ketotifen, Zyrtec, and Famotidine for years
In context ↗ - Diclofenac powder (NSAID) · Helped
Diclofenac powder (NSAID) and prednisone have been the only things to reduce the head pain
In context ↗ - prednisone · Helped
Diclofenac powder (NSAID) and prednisone have been the only things to reduce the head pain ... my neurologist won’t let me keep prednisone on hand or take it regularly.
In context ↗ - Acetazolamide · Helped
Acetazolamide helps mine some. ... this ended up helping the throbbing/pulsating symptoms in my head.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | long COVID with chronic head pain as the main problemchronic head pain being my primary issue for 6yIn context ↗ |
| 2025-10-13 | iliac vein stent; nutcracker syndrome foundNext thing up was illiac vein stent. During which the exploration of other veins in the region they discovered I had nutcracker syndrome.In context ↗ |
| 2026-10-27 | still needs LDN for stent pain; head pain ongoingIt helps my stent inflammation. I can’t go without itIn context ↗ |
Adverse events
- Other surgery (adrenal, lung, venoplasty)“My body is hypersensitive so the stent causes me pain unless I take LDN.” In context ↗ Side effects
- “My latest allergy to NSAIDs presents itself as kidney pain and like a really bad, rapid onset UTI.” In context ↗ Allergic reaction / anaphylaxis
Symptoms mentioned
Headaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesPOTS & dysautonomiaTemperature regulation
Their words about their symptoms
- Headaches & migraine
chronic head pain being my primary issue for 6y
In context ↗ - POTS & dysautonomia
I already have MCAS, POTs, and other issues like nutcracker syndrome.
In context ↗ - Mast cell (MCAS) & allergies
My MCAS has been somewhat managed by Xolair, Ketotifen, Zyrtec, and Famotidine for years
In context ↗ - Heart symptoms & palpitations
Tachacardia doing nothing at the long covid clinic.
In context ↗ - Temperature regulation
I also have had chronically cold feet my entire life
In context ↗