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ME/CFS Outcome unclear

ME/CFS and POTS: wheelchair use for crashes, overall outcome unclear

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
May 2025
In their words
  • Condition: ME/CFSit has been so helpful in reducing crashes In context ↗
  • At worst: ModerateI started using it because of pots, however it has been so helpful in reducing crashes In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Kite 58677, who has POTS, began using a wheelchair because of the POTS and said it had been very helpful in reducing crashes. By May 2025 they were using an Excel G Explorer folding push wheelchair, later a narrower 16-inch seat version that fitted through doorways better. The posts give no onset, duration, doses or overall outcome.

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What they tried

Also tried

Their words about each treatment
  • wheelchair · HelpedI started using it because of pots, however it has been so helpful in reducing crashes In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
—ME/CFS with POTS; crashes with activityI started using it because of pots In context ↗Moderate
2025-02-24started using a wheelchair, which reduced crashesI started using it because of pots, however it has been so helpful in reducing crashes In context ↗Moderate
2025-05-15using an Excel G Explorer folding push wheelchair; moved to a narrower 16-inch seat versionBut my newer 16inch wide seat version fits much better :) In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaI started using it because of pots In context ↗
  • Post-exertional malaiseit has been so helpful in reducing crashes In context ↗

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