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ME/CFS Mild → no benefitIll for 19 months

ME/CFS fatigue back heavily after daily workouts, still a constant brutal drain

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
19 months
Last post
Jan 2020
In their words
  • Condition: ME/CFSI think I have mild CFS that is pushed over into moderate/bad CFS through low T. In context ↗
  • At worst: MildI can go to class and kind of have a social life but it’s a constant and brutal drain. In context ↗
  • Now: No benefitFatigue started to come back heavy and since September 2019 it’s been terrible. In context ↗
  • Began after: another virusIt came after a very brief stomach bug.
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A 20-year-old male student has had CFS-like symptoms since June 2018, after a brief stomach bug. Fatigue settled after a few months at about 70-75% of normal health, but daily hard workouts in summer 2019 brought it back heavily, and since September 2019 he attends class and sees people only at a constant, brutal drain. Tests found very low testosterone (180-350); he was weighing testosterone replacement but had not started it.

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What they tried

Their words about each treatment
  • work out hard as hell every day · Worsework out hard as hell every day ... I felt worse and worse In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
June 2018CFS-like symptoms began after a brief stomach bugI’ve had CFS-like symptoms since June 2018. It came after a very brief stomach bug. In context ↗Not stated
Fall 2018fatigue leveled out at about 70-75% of healthAfter a few months of pretty bad fatigue, it leveled out, and I constantly felt like I was operating on 70-75% health In context ↗Mild
Summer 2019daily hard workouts; fatigue came back heavyas the pounds fell off I felt worse and worse. Fatigue started to come back heavy In context ↗Mild
September 2019fatigue became terriblesince September 2019 it’s been terrible In context ↗Mild
2020-01-25still attending class and seeing people at a constant drainI can go to class and kind of have a social life but it’s a constant and brutal drain In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisemy dumbass thought it would be a good idea to work out hard as hell every day ... as the pounds fell off I felt worse and worse In context ↗
  • Anxiety & low moodI’ve dealt with severe anxiety my whole life In context ↗

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