ME/CFS crashes lasting days to nearly two months, now alternating with fine periods
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 1 year
- Last post
- Feb 2024
In their words
- Condition: ME/CFS
Think I have ME/CFS or Something Like It
In context ↗ - At worst: Severe
Stayed on the couch or in bed basically all day, every day.
In context ↗ - Now: No benefit
And then I crashed again. On and on for over a year now.
In context ↗ - Began after: nothing they could name
for no reason for days
Summary
For over a year by February 2024 the user had crashes lasting days to nearly two months that came with no clear trigger and, they said, no link to activity or rest. During a six-to-seven-week crash they stayed in bed or on the couch, took weeks off work and then worked from home; rest did not end it, but pushing back to normal activity did. They felt normal for a few weeks, then crashed again, and by February 2024 alternated between crashes and fine periods.
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What they tried
Also tried
Their words about each treatment
- Resting · No change
Didn't do any exercise at all. Stayed on the couch or in bed basically all day, every day. And the crash just continued.
In context ↗ - Pushing through · Not said
I was just going to go back to my normal activity level and push through it
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about a year before February 2024 | start of recurring good and bad periods with crashesOn and on for over a year now.In context ↗ | Not stated |
| a year before February 2024 | six-to-seven-week crash, off work then working from home, in bed or on the couch all dayStayed on the couch or in bed basically all day, every day. And the crash just continued.In context ↗ | Severe |
| after the six-to-seven-week crash | pushed back to normal activity level and the crash ended; felt normal for a few weeksat some point it just sort of ended and I felt normal again for a few weeksIn context ↗ | Near normal |
| a few weeks later | crashed again; resting did not helpBut then I crashed again. And I tried resting again and it didn't help.In context ↗ | Moderate |
| February 2024 | keeping a moderate activity level, alternating between crashes and fine periodsSo now I just sort of maintain a moderate activity level and sometimes I'm in a crash, and sometimes I'm fine.In context ↗ | Mild |