ME/CFS
Severe → no benefit
Most of day in bed with ME/CFS, stimulant gave no fatigue relief, still getting worse
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Mar 2025
In their words
- Condition: ME/CFS
Everything I read about CFS and autistic burnout say not to push.
In context ↗ - At worst: Severe
I've cut back significantly on what I do with my day to the point where I spend most of my day just lying in bed.
In context ↗ - Now: No benefit
And having cut back on things, I'm still getting worse.
In context ↗
Summary
By early 2025 Glacier 92379 was spending most of the day lying in bed, too exhausted for reading, scrapbooking or photography, managing only Animal Crossing, social media and music. A stimulant kept them awake during the day but did not reduce their fatigue. They had cut back their activity a great deal yet said they were still getting worse, and asked whether to push themselves more amid pressure from their mother and likely autistic burnout.
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What they tried
Their words about each treatment
- a stimulant medication · No change
I am on a stimulant medication which keeps me awake during the day - it doesn't make me less fatigued though, just stops me from sleeping.
In context ↗ - cutting back on activity · No change
I've cut back significantly on what I do with my day to the point where I spend most of my day just lying in bed. ... And having cut back on things, I'm still getting worse.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2025-03-04 | stuck in bedroom, too exhausted for most hobbiesI'm mostly stuck in my bedroom these days and I don't have the energy or ability to do most of my hobbiesIn context ↗ | Severe |
| 2025-03-10 | cut back activity further and still getting worsehaving cut back on things, I'm still getting worseIn context ↗ | Severe |
Adverse events
- Stimulants (unspecified)“I am on a stimulant medication which keeps me awake during the day - it doesn't make me less fatigued though, just stops me from sleeping.” In context ↗ Insomnia from treatment