ME/CFS
No benefitIll for 3 years
ME/CFS with ongoing EBV for three years; treatments brought no benefit and health declining
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 3 years
- Last post
- Mar 2026
In their words
- Condition: ME/CFS
an ongoing EBV infection on top of your ME like myself
In context ↗ - Now: No benefit
my health has been declining pretty rapidly
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user with ME/CFS reported an ongoing EBV infection for about three years, and had tried multiple treatments for it without success. By March 2026 their health was declining rapidly. A neurologist suggested a spinal tap to check for encephalitis, but they worried the procedure could cause a major crash.
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Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | onset of ME/CFS with ongoing EBV infectionI’ve had it going on 3 yearsIn context ↗ |
| 2026-03-16 | health declining rapidly; neurologist suggested spinal tapmy health has been declining pretty rapidlyIn context ↗ |