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ME/CFS Severe → no benefit

Severely messed up with ME/CFS after lamotrigine and Ativan, no better eight months on

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
Not stated
Last post
Oct 2023
In their words
  • At worst: Severestill severely messed up 8 months later In context ↗
  • Now: No benefitI'm still severely messed up 8 months later In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A person in r/cfs said a doctor put them on lamotrigine and a daily benzodiazepine (Ativan); after a month they had a huge reaction, and eight months later they said they were still severely messed up and their eyes were screwed. They said they now hate doctors.

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What they tried

Their words about each treatment
  • lamotragrine · Much worseDr put me on lamotragrine and daily benzo (Ativan) - after a month I had a huge reaction and I'm still severely messed up 8 months later - my eyes are screwed In context ↗

Adverse events

  • “I took some treatment for it and it wrecked my eyes (long story) but now I really hate Dr's” In context ↗ Side effects
  • Lamotrigine (Lamictal)“Dr put me on lamotragrine and daily benzo (Ativan) - after a month I had a huge reaction and I'm still severely messed up 8 months later - my eyes are screwed” In context ↗ Side effects
  • Lorazepam (Ativan)“Dr put me on lamotragrine and daily benzo (Ativan) - after a month I had a huge reaction and I'm still severely messed up 8 months later - my eyes are screwed” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms

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