ME/CFS
Mild → much better
Mild ME/CFS with crashes from a high heart rate, now much better and improving slowly
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
I have mild CFS now
In context ↗ - At worst: Mild
I have mild CFS now, where I can walk/socialise at a slightly more relaxed pace than everyone else, but I can’t do any super high HR activities without causing a crash.
In context ↗ - Now: Much better
I have mild CFS now ... Either way, I am definitely improving slowly.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Posted in 2026 that they had mild CFS and were improving slowly, able to walk and socialise at a relaxed pace but unable to do high-heart-rate activity without crashing. A very slow run a couple of months earlier had brought back symptoms they had cleared. They track heart rate with a Visible band, which alerts at their 115 bpm exertion zone, and wondered whether they were safe walking at 120/125 bpm while avoiding a more sensitive 130+ bpm zone.
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What they tried
Also tried
Their words about each treatment
- visible band · Helped
I use a visible band to track my HR and send alerts when I’m in my exertion zone (115 bpm). This has been really useful to find a new baseline
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| a couple of months before September 2026 | very slow run brought back symptomsI tried to go for a very slow run a couple of months ago and it has reset all sorts of symptoms I’d managed to free myself of!In context ↗ | Not stated |
| 2026-09-01 | mild CFS, improving slowly, tracking heart rateI have mild CFS now, where I can walk/socialise at a slightly more relaxed pace than everyone else, but I can’t do any super high HR activities without causing a crash.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I can’t do any super high HR activities without causing a crash
In context ↗