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Long COVID Outcome unclearIll for 1 month

Long COVID with POTS, MCAS and a burning shingles rash; Paxlovid helped a ton

Condition
Long COVID
At worst
Not stated
Ill for
1 month
Last post
Jun 2022
In their words
  • Condition: Long COVIDI had Covid May 23, I already had POTS, and MCAS before Covid In context ↗
  • Began after: COVIDI had Covid May 23 In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

They had POTS and MCAS before catching COVID in May 2022, then a blistering, burning rash spread from the face across the body; it was diagnosed as shingles and treated with antivirals, steroids and allergy medication. A steroid shot helped only a smidge, and they said Paxlovid helped a ton. Little is said about how much the illness limited them.

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What they tried

Their words about each treatment
  • Paxlovid · Helped a lotPaxlovid I think helped me a ton In context ↗
  • antivirals · Not saidI was diagnosed with shingles and put on antivirals. In context ↗
  • a shot of steroids · Helpedthey gave me a shot of steroids which I think helped a smidge In context ↗
  • allergy meds · Not saidNow I’m on antivirals, steroids, and allergy meds. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
2022-05-23COVID infection in someone who already had POTS and MCASI had Covid May 23 In context ↗
2022-06-22blistering rash spread from face over whole body, diagnosed as shinglesI was diagnosed with shingles and put on antivirals. The next day it spread to my entire body In context ↗
2022-06-23said Paxlovid helped a tonPaxlovid I think helped me a ton In context ↗Paxlovid / nirmatrelvir

Adverse events

  • “I was diagnosed with shingles and put on antivirals. The next day it spread to my entire body” In context ↗ Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaI already had POTS, and MCAS before Covid In context ↗

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