Long COVID with PEM, vertigo and leg weakness; cane and walker, nothing helped
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 4 years
- Last post
- Feb 2026
In their words
- Condition: Long COVID
LC since end of ‘21
In context ↗ - At worst: Moderate
between post exhertional malaise/fatigue, vertigo and a leg weakness ... always using a cane, walker on extremely bad days
- Now: No benefit
I’ve not found anything that really helps other than rest
In context ↗ - Began after: COVID
LC since end of ‘21
In context ↗
Summary
A Reddit user who dates their long COVID to the end of 2021 and was still ill more than four years later. They described post-exertional malaise, vertigo, unexplained leg weakness, and arm and leg symptoms that came on after severe fatigue they now know was PEM. Mobility declined to always using a cane, a walker on extremely bad days and a mobility scooter when able and out of the house. Nothing helped except rest, which being on for family sometimes made impossible.
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What they tried
Also tried
Their words about each treatment
- cane, walker and motorized scooter · Helped
It makes such a difference, went so far as to get a.. motorized scooter for longer outings and it’s so awesome.
In context ↗ - rest · Helped
I’ve not found anything that really helps other than rest
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| end of 2021 | long COVID beganLC since end of ‘21In context ↗ | Not stated |
| spring 2022 | mobility declined; gave in and started using a cane, then a walkerI got the cane the following spring, fought the walker, but gave in for some things.In context ↗ | Moderate |
| 2026-02-18 | still needs a cane, a walker on bad days and a mobility scooter for outingsI’m always using a cane, walker on extremely bad days and surrendered to using a mobility scooter when I’m able and out of the house.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
between post exhertional malaise/fatigue, vertigo and a leg weakness no one can explain
In context ↗ - Muscle weakness
a leg weakness no one can explain
In context ↗