Mostly bedbound with ME/CFS, now somewhat better with rest and less work
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- years
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I’ve had ME for years now and gone through bouts where I’ve been moderate and mostly bedbound.
In context ↗ - At worst: Moderate
gone through bouts where I’ve been moderate and mostly bedbound
In context ↗ - Now: Somewhat better
I am mild-mod but getting in cars and traveling is very difficult for me. ... I’ve been able to do things like take my dog to the vet 3x this past 2 months with minimal complications so that’s good but I’ve been pushing it.
In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
Owl 51863 had ME for years, with bouts of being moderate and mostly bedbound. Cutting down on work and activities and resting in all forms, including 2-4 hour daytime naps, made her ME more tolerable and reduced her symptoms. By late 2026 she rated herself mild to moderate ME and found car travel very difficult; earlier she had spent much of the day reclining. Pepcid calmed her nervous system at first but its impact faded.
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What they tried
What they credit
Also tried
Their words about each treatment
- Pepcid · Helped a lot
Pepcid does this for me! It was a life changer ... it made my nervous system so calm
In context ↗ - rest in all forms (including 2-4 hr naps) · Helped
I stopped having as many when I cut down on work and activities more, but also a key part was allowing myself to take a 2-4 hr nap during the day
In context ↗
Approaches: Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | ME beganI’ve had ME for years nowIn context ↗ | Not stated |
| — | bouts of being moderate and mostly bedboundgone through bouts where I’ve been moderate and mostly bedboundIn context ↗ | Moderate |
| 2025-12-15 | better than before, about 20 hours a day in bed or recliningNow I spend ~20 hrs a day in bed or on the couch reclining, which is better than it was.In context ↗ | Moderate |
| 2026-08-09 | cut down on work and activities and focused on rest in all forms, including long napsmy ME became way more tolerable and I had fewer symptoms after becoming way more focused on rest in all formsIn context ↗ | Mild |
| 2026-10-18 | mild to moderate ME; car travel very difficult, a short visit may cause mild PEMI am mild-mod but getting in cars and traveling is very difficult for me.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
it will probably set me up for mild PEM but that’s more doable
In context ↗ - Sleep problems
I used to have the same thing!!!! I stopped having as many when I cut down on work and activities more
In context ↗ - Anxiety & low mood
calling the suicide helpline when it gets really bad
In context ↗
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