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Long COVID Moderate → relapsedIll 13 months before improving or writing

Long COVID, unable to work, iron improved symptoms for months then they returned

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
13 months
Last post
Apr 2024
In their words
  • Condition: Long COVIDI still have long Covid symptoms In context ↗
  • At worst: ModerateI can no longer work In context ↗
  • Now: Relapseda few months after stopping the iron symptoms came back and I can no longer work In context ↗
  • Began after: COVIDgot covid I. March 2023 and I am still struggling with long covid In context ↗
Read from 8 of their posts and comments; links to the 6 this page draws on

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Summary

Osprey 84135 caught COVID before vaccination and took a long time to recover, then got COVID again in March 2023 and has had long COVID since. Low ferritin was found and iron supplements improved their symptoms for a few months, enough to return to work, but the symptoms came back when they stopped. A second course of iron made no difference and they were still unable to work with ongoing symptoms months later.

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What they tried

Their words about each treatment
  • iron · Helpedgiven iron seemed to improve so went back to work. Symptoms came back In context ↗
  • metformin · Not saidI am already on metformin for diabetes and still got long covid In context ↗
  • Slimming World · Not saidI have joined slimming world and been able to continue losing weight In context ↗

Approaches: Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
—COVID before vaccination, slow recoverythe first time was before vaccination and I took a long time to recover and was never a fit as before covid but I was at a level I was managing In context ↗Not stated
March 2023second COVID; long COVID, off work for monthsgot covid I. March 2023 and I am still struggling with long covid In context ↗Moderate
4 moiron for low ferritin, symptoms improved, back to workwas found to have low ferritin and given iron seemed to improve so went back to work In context ↗MildIron infusion / ferritin repletion
2023-11-07symptoms returned after stopping iron; off work againSymptoms came back went to doctors thinking low iron again but told no iron is fine ... Currently been off work 5 weeks this time In context ↗Moderate
2024-04-15still has long COVID symptoms and cannot workI still have long Covid symptoms not sure what would happen if still on the meds now. In context ↗Moderate

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