Long COVID
Outcome unclearNeeds ongoing treatment
Long COVID with POTS and MCAS, well managed with medication
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jun 2026
In their words
- Condition: Long COVID
I get the pyridostigmine from a Long Covid NP
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Pelican 75721 reported having both POTS and MCAS and said the combination was pretty well managed with medication. Xolair, metoprolol and pyridostigmine helped most, reducing histamine food reactions, itchiness, flushing and anxiety; LDN and oral cromolyn also helped. They still had POTS and MCAS at the time of writing.
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What they tried
Also tried
Their words about each treatment
- Xolair · Helped
Xolair got rid of most of my histamine food reactions and I've been able to add so much back to my diet, as well as itchiness, skin flushing and anxiety
In context ↗ - Metoprolol · Helped
Metoprolol (12.5 mg) and pyridostigmine (Mestinon, just 30mg) have really helped with the POTS and MCAS combo
In context ↗ - pyridostigmine (Mestinon) · Helped
pyridostigmine (Mestinon, just 30mg) have really helped with the POTS and MCAS combo
In context ↗ - LDN · Helped
I also take LDN and oral cromolyn sodium, which help for sure, but I think the others made a bigger impact for me
In context ↗
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I definitely still have both POTS and MCAS
In context ↗ - Anxiety & low mood
as well as itchiness, skin flushing and anxiety
In context ↗