Suspected ME/CFS worsened sharply, somewhat better after no longer pushing through
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 months
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
(undiagnosed but suspecting me cfs)
In context ↗ - At worst: Moderate
now i'm at home all day every day, unmedicated and completely alone except for a few hours on weekends when my mum visits
In context ↗ - Now: Somewhat better
i'm better than i was, sort of, because i'm not trying to push through anymore
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
Cove 49795 developed suspected ME/CFS in March 2026, with things worsening sharply in early April, and had to stop ADHD stimulants because of POTS. By mid-June they felt somewhat better after no longer pushing through and doing therapy by video, though they were at home all day every day. In August they said creatine helped more than carnitine. By October they said music or YouTube while scrolling was the most restful rest they could manage.
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What they tried
What they credit
Their words about each treatment
- adhd medication · Much worse
i'm 90% sure that stimulants contributed to my downfall
In context ↗ - radical rest · Worse
if i attempt “radical rest” and lie there in the dark doing nothing, i end up falling apart completely
In context ↗ - therapy · Not said
i'm trying to force myself to do therapy over video chat rather than going there in person
In context ↗ - not pushing through · Helped
i'm better than i was, sort of, because i'm not trying to push through anymore
In context ↗ - creatine · Helped
for me personally creatine 5mg has done more than carnitine
In context ↗
Approaches: Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2026 | Symptoms begani was getting symptoms in marchIn context ↗ | Not stated | |
| early April 2026 | Things got much worse; stopped ADHD medication because of POTSbut shit hit the fan in early aprilIn context ↗ | Moderate | |
| 2026-06-16 | Stopped pushing through, rested, therapy moved to videoi'm better than i was, sort of, because i'm not trying to push through anymoreIn context ↗ | Moderate | Pacing and the energy envelope |
| 2026-10-16 | Still resting at home, unmedicated; blames stimulants for the declinei'm 90% sure that stimulants contributed to my downfallIn context ↗ | Moderate |
Adverse events
- Radical rest“i end up falling apart completely and by that i mean scream-crying, hyperventilating, hitting things, melting down and wailing” In context ↗ Mood or psychiatric effects
- Stimulants (unspecified)“i had to quit my adhd medication because of my POTS (heart rate was off the scale)” In context ↗ Heart rhythm problems
- Stimulants (unspecified)“i'm 90% sure that stimulants contributed to my downfall. be very very cautious.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
i had to quit my adhd medication because of my POTS (heart rate was off the scale)
In context ↗ - Post-exertional malaise
if anything is going to trigger pem and make me worse, i have to imagine that this sort of thing would be it?
In context ↗ - Anxiety & low mood
i’m honestly in the darkest place mentally i have ever been in my life
In context ↗ - Headaches & migraine
i dissociate, get a migraine and go numb
In context ↗
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