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ME/CFS Outcome unclear

ME/CFS fatigue making concerts and busy days hard, using rest and headphones

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Jun 2023
In their words
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A person with chronic fatigue described fatigue that made concerts and busy days hard to manage. They planned rest before and after events, used headphones when noise became overwhelming and preferred seating to standing and struggling, though they could walk unaided. After overwhelming days they went to bed early and usually felt able to make a clear-headed plan by morning.

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Asking aboutIsland 44276’s story

What they tried

Their words about each treatment
  • managing energy expended either side of the event · Helpedmanage energy expended either side of the event to try & mitigate the fatigue a bit (aware this doesn't make a difference for everyone but I found it helpful) In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
—chronic fatigue symptomsmanage energy expended either side of the event to try & mitigate the fatigue a bit In context ↗Not stated
2023-06-26managing fatigue and overwhelmI try & do what is absolutely necessary & accept that the rest is just not happening today In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisemanage energy expended either side of the event to try & mitigate the fatigue a bit In context ↗
  • Light & noise sensitivityI take headphones to block a bit of noise if it's getting overwhelming In context ↗

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Asking aboutIsland 44276’s story

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