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ME/CFS Outcome unclear

ME/CFS: light and sound like sandpaper; eyemask and brown noise gave a little sleep

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Jul 2026
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Stone 84433 described a stretch when any light or sound felt like sandpaper on the brain and a vertigo loop stopped them sinking into sleep, leaving weeks with almost no rest. A weighted eyemask and a white-noise machine set to low brown noise gave a tiny crack of relief and, eventually, a couple of hours of real sleep. They called it not a fix.

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What they tried

Also tried

eyemask with a slight weight to it· Helpedwhite noise machine set to a low brown noise· Helped
Their words about each treatment
  • eyemask with a slight weight to it · HelpedThe only thing that gave me a tiny crack of relief was an eyemask with a slight weight to it ... it took the edge off enough that I eventually got a couple hours of real sleep after weeks of nothing In context ↗
  • white noise machine set to a low brown noise · Helpeda white noise machine set to a low brown noise. Not a fix, but it took the edge off enough that I eventually got a couple hours of real sleep after weeks of nothing In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—Light and sound sensitivity with a vertigo loop blocked sleep for weeksWent through a stretch where any light or sound felt like sandpaper on my brain, and that vertigo loop where you can't fully sink into sleep is brutal. In context ↗
2026-07-05Weighted eyemask and brown-noise machine gave slight relief and a few hours of sleepThe only thing that gave me a tiny crack of relief was an eyemask with a slight weight to it and a white noise machine set to a low brown noise. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Light & noise sensitivityany light or sound felt like sandpaper on my brain In context ↗
  • Sleep problemsthat vertigo loop where you can't fully sink into sleep is brutal In context ↗

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