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Long COVID Moderate → relapsedIll 1 year before improving or writingNeeds ongoing treatment

Moderate long COVID for a year, well after flu, then relapsed after a cold

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
1 year
Last post
Jun 2026
In their words
  • Condition: Long COVIDI had moderate long COVID for a year In context ↗
  • At worst: ModerateI had moderate long COVID for a year In context ↗
  • Now: RelapsedI had moderate long COVID for a year, it disappeared after I was exposed to flu. Felt great for most of a year, flared again after a mild cold. In context ↗
  • Began after: COVIDI had moderate long COVID for a year In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on

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Summary

Falcon 54096 had moderate long COVID for a year, which resolved after an exposure to flu; they felt well for most of a year, then flared again after a mild cold. By mid-2026 they were in a resurgence, pacing with intervals of activity and rest, monitoring heart rate and using electrolytes, and had stopped their gym routine. A large thyroid was removed and they felt better immediately.

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Asking aboutFalcon 54096’s story

What they tried

Their words about each treatment
  • whole thyroid removed · HelpedHad whole thyroid removed and felt better immediately. In context ↗
  • extended release metformin · Not saidI requested extended release metformin, started at 500mg went up to 1000mg after 2 weeks. No GI side effects, did make me tired. In context ↗
  • water with electrolytes · Helpeddrinking lots of water with electrolytes and resting helps with the fatigue and lightheadedness In context ↗
  • rest · Helpedrest, pacing and electrolytes are essential In context ↗
  • pacing · HelpedFor me, intervals of activity and rest are best. In context ↗
  • gym routine · Not saidI’ve had to stop my gym routine as I couldn’t pace myself. In context ↗

Approaches: Surgery & structural

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
onsetlong COVID beganI had moderate long COVID for a year In context ↗Moderate
12 molong COVID disappeared after exposure to fluit disappeared after I was exposed to flu In context ↗Recovered
23 moflared again after a mild coldflared again after a mild cold In context ↗Not stated
2026-06-02still in an LC resurgence, pacing with intervals of activity and reclining restI’m currently in a LC resurgence and agree that rest, pacing and electrolytes are essential. In context ↗Mild

Adverse events

  • Metformin“I requested extended release metformin, started at 500mg went up to 1000mg after 2 weeks. No GI side effects, did make me tired.” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiadrinking lots of water with electrolytes and resting helps with the fatigue and lightheadedness. In context ↗

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Asking aboutFalcon 54096’s story

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