Long COVID since 2021; baricitinib helped neurological symptoms then a bad relapse
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 5 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
collaboration on long covid ME CFS herpes viruses
In context ↗ - Now: Relapsed
I thought I finally found the cure until I worsened again 2-3 months after and it was awful.
In context ↗ - Began after: COVID
I have been told by a psychiatrist working with my lc doc
Summary
Had been ill with long COVID since 2021 and had lost years to it. In 2026 the JAK inhibitor baricitinib improved their neurological symptoms and they thought they had found the answer, but two to three months later they worsened badly and it was awful. By October 2026 they had not found a cure and still hoped for a positive outcome, while a psychiatrist hoped treatments would come.
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What they tried
What they credit
Their words about each treatment
- baricitinib · Helped
Though Jak baricitinib improved my neuro this year I thought I finally found the cure until I worsened again 2-3 months after and it was awful.
In context ↗
Approaches: JAK inhibitors
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2021 | long COVID beganI lost so many years since 2021In context ↗ | |
| 2026 | neurological symptoms improved on a JAK inhibitorJak baricitinib improved my neuro this year I thought I finally found the cureIn context ↗ | Baricitinib (Olumiant) |
| summer 2026 | worsened badly 2-3 months after improvingI worsened very bad this summer after improving on baricitinibIn context ↗ | |
| October 2026 | still ill, no cure foundSo far I have not yet found a cure.In context ↗ |
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