Miruvor
Sign up
ME/CFS Mild → no benefit

ME/CFS cycle of rest, feeling normal, overdoing it and becoming ill again

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
May 2024
In their words
  • Condition: ME/CFSwww.reddit.com/r/cfs ... I have a run of a few days where I feel pretty normal and unbelievably I kinda forget I'm sick so I over do it and then I'm sick again In context ↗
  • At worst: Mildafter resting days/weeks I have a run of a few days where I feel pretty normal and unbelievably I kinda forget I'm sick so I over do it and then I'm sick again In context ↗
  • Now: No benefitso I over do it and then I'm sick again. This happens frequently. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

Request to remove this story

Summary

The person described ME/CFS as a frequent cycle: after days or weeks of rest they would have a few days of feeling pretty normal, forget they were ill, overdo it and become ill again. They said they were afraid that if they were suddenly healed they would forget how awful the illness can be.

Ask Miruvor AI

Asking aboutGlacier 13806’s story

What they tried

Also tried

Their words about each treatment
  • resting · HelpedSome times after resting days/weeks I have a run of a few days where I feel pretty normal In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—onset of ME/CFS, details not givenI'm afraid if I was suddenly healed I would totally forget just how awful this illness can be. In context ↗
—crashed again after overdoing it on a good runI over do it and then I'm sick again In context ↗
2024-05-17recurring cycle of a few near-normal days after resting, then ill againSome times after resting days/weeks I have a run of a few days where I feel pretty normal In context ↗

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI over do it and then I'm sick again In context ↗

Ask Miruvor AI

Asking aboutGlacier 13806’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime