Long COVID
Outcome unclearIll for 4 years
Long COVID with recurring abdominal pain, still in pain and building a diagnostic tool
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- 4 years
- Last post
- May 2026
In their words
- Condition: Long COVID
Built a tool to help diagnose root cause of my long covid symptoms
In context ↗
Summary
The person developed long COVID after a bout of COVID in 2022 and was diagnosed with SIBO and MCAS. They reported recurring abdominal pain that persisted despite multiple rounds of xifaxan. By 2026 they were still dealing with the pain and had built a diagnostic tool that maps possible causes and updates probabilities as they add test results, medications and what makes symptoms better or worse; they said they were about 60% through it.
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What they tried
Also tried
Their words about each treatment
- xifaxan · No change
Multiple rounds of xifaxan later, still dealing with recurring abdominal pain.
In context ↗
Symptoms mentioned
Their words about their symptoms
- Gut problems
still dealing with recurring abdominal pain
In context ↗ - Mast cell (MCAS) & allergies
diagnosed with SIBO & MCAS
In context ↗