Robyn Dale
- Condition
- Long COVID
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- 5 months
- Published
- May 2022
Summary
Robyn was prescribed short-term propranolol for heart arrhythmia and palpitations, at doses that were increased despite her objections, short-term zopiclone and diazepam to help her rest, and medium-term amitriptyline for insomnia, mood, and to stop cluster headaches and muscle spasms, with no specific doses stated on the page. Alongside medication she used CBT-based therapy, daily pacing, meditation and positive affirmations, a gratitude practice, 'Yoga with Adriene' videos, an hour of daily dog-walking paired with comedy podcasts, and panic-management techniques such as sitting with her head between her knees and eating biscuits with sugary tea. After an October 2021 COVID infection she crashed severely in mid-December 2021 with a resting heart rate over 190 bpm, uncontrollable shaking, hallucinations, suicidal ideation, and loss of executive function, leaving her bedbound and in near-constant fight-or-flight for weeks. On medication and rest alone she crept to about 30% function, but after finding other people's recovery stories she says she 'shot very quickly...to 60%,' and by around five months post-crash she reports being about 90% and able to 'engage in everything I want to as long as I pace it.' She describes multiple relapses along the way that each 'taught me a limit or a new piece of the long covid puzzle,' and even at her best still has occasional half-day crashes, stating that continued pacing remains necessary.
Read it in their words
longcovidcured.com — a recovery advocacy site.
What they credit
Credits CBT & mindset, POTS medication, Alternative therapies, Pacing, Benzodiazepines and Klonopin, Beta-blockers, CBT and psychotherapy, Meditation, yoga, breathwork, Pacing and the energy envelope, SSRIs and antidepressants.
Symptoms mentioned
Symptoms: Anxiety & low mood, Headaches & migraine, Heart symptoms & palpitations, Pain & fibromyalgia, Sleep problems.
Similar stories
-
Robyn Dale
Robyn's treatment combined short courses of propranolol, zopiclone and diazepam early on with medium-term amitriptyline for insomnia, mood and muscle spasms, alongside daily walking, yoga, meditation and graded activity. She crashed severely in December 2021…
-
How I got in remission/cured my ME/CFS
Ali_Mardiyev, disabled for 1.5 years with POTS/dysautonomia/severe fatigue/PEM, layered a stellate ganglion block with beta-blocker, a testosterone course, several psychiatric medications, intermittent fasting and a slow graded-exercise ramp starting April…
-
From ME to MMA
Recovered after a stay at the AiR Rauland rehabilitation centre, which taught mindfulness, energy-pacing (sorting activities into "green" and "yellow" rest zones) and structured daily routines, following a second severe relapse; before that she had seen a…
-
William Groves' Recovery Story
Followed the Gupta Program (joined 2023), read Dan Neuffer's book "CFS Unravelled" and Joseph Murphy's "The Power of the Unconscious Mind," got nutrition counseling through the Optimum Health Clinic, and combined this with pacing, meditation, self-hypnosis,…