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Long COVID Moderate → somewhat betterIll 4 years before improving or writing

Long COVID gut and exercise intolerance, somewhat better with low-FODMAP diet and walking

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
4 years
Last post
May 2024
In their words
  • At worst: ModerateI hover between 40%-70% recovered, depending on stress and how much I push myself with exercise. In context ↗
  • Now: Somewhat betterI went from only 5 minutes, to now about an hour without any post-exercise malaise. In context ↗
  • Began after: COVIDGetting Covid (March 2020) completely screwed with my GI tract In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

After COVID-19 in March 2020, they developed long COVID with gut problems and exercise intolerance. A low-FODMAP elimination diet helped identify trigger foods over 4-6 months, and they built walking from 5 minutes to about an hour without post-exertional malaise. A burst of intense exercise caused PEM, and by May 2024 they hovered between 40% and 70% recovered depending on stress and exercise, still tolerating only walking.

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What they tried

Also tried

Their words about each treatment
  • FODMAP elimination diet · HelpedI did the FODMAP elimination diet and it helped me figure out my trigger foods. In context ↗
  • walking stamina built up slowly · HelpedI went from only 5 minutes, to now about an hour without any post-exercise malaise. In context ↗
  • short burst of intense exercise · Worsejumping back into a short burst of intense exercise, caused me to have PEM too In context ↗

Approaches: Exercise and activity

Their path

Very severeSevereModerateMildNear normalRecovered4.2 y4.2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 4.2 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 2020COVID-19 infection; GI tract affectedGetting Covid (March 2020) completely screwed with my GI tract In context ↗Not stated
—could walk only 5 minutes at a timeI went from only 5 minutes, to now about an hour without any post-exercise malaise. In context ↗Moderate
2024-03-15FODMAP elimination helped identify trigger foodsI did the FODMAP elimination diet and it helped me figure out my trigger foods. In context ↗Not stated
2024-04-28walking stamina increased from 5 minutes to about an hour without PEMI’ve also been building up my walking stamina slowly and I think it has been improving my overall energy over time. I went from only 5 minutes, to now about an hour without any post-exercise malaise. In context ↗MildEveryday exercise and activity
2024-05-28short burst of intense exercise caused PEMI did something similar with jumping back into a short burst of intense exercise, caused me to have PEM too. In context ↗Moderate
2024-05-2840-70% recovered depending on stress and exerciseI hover between 40%-70% recovered, depending on stress and how much I push myself with exercise. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Gut problemsGetting Covid (March 2020) completely screwed with my GI tract In context ↗
  • Post-exertional malaisejumping back into a short burst of intense exercise, caused me to have PEM too In context ↗

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