ME/CFS crash with insomnia and hair loss, now somewhat better, showering every other day
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 18 months
- Last post
- Dec 2023
In their words
- Condition: ME/CFS
Cigarette Induced CFS Timeline
In context ↗ - At worst: Severe
10/23 - crash; stop work; shower once every 3 days; go outside once every 11 days
In context ↗ - Now: Somewhat better
12/23 - ability to eat handmade sandwiches returns; showering every other day.
In context ↗ - Began after: mould or toxic exposure
my adrenal fatigue caused by second hand smoke exposure while working at an adult home
Read from 2 of their posts and comments; links to the one this page draws on
Summary
Stream 54839's timeline starts in May 2022, blaming second-hand smoke at the adult home where they worked. They lost tolerance for raw foods and plastic containers, developed insomnia and hair loss, and dropped from 155 to 125 lbs. In October 2023 a crash stopped work; they showered every three days and went outside once in 11 days. By December 2023 they could eat handmade sandwiches and shower every other day.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 15 months after onset: the story doesn’t say how ill they were before that. 5 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 5/22 | illness begins, weight 155 lbs5/22 - starting weight 155 lbsIn context ↗ | Not stated |
| 7/22 | lost ability to eat raw foods7/22 - lose ability to eat raw foods (immune system weakens)In context ↗ | Not stated |
| 10/22 | insomnia began10/22 - insomnia; inability to sleep at nightIn context ↗ | Not stated |
| 12/22 | hair loss began12/22 - hair loss beginsIn context ↗ | Not stated |
| 6/23 | weight down to 125 lbs, could not touch anything dirty6/23 - weight drops to 125 lbs; can’t touch anything dirty without feeling “icky”In context ↗ | Not stated |
| 8/23 | able to work only three days a week8/23 - can only work 3 days a weekIn context ↗ | Mild |
| 9/23 | able to work only two days a week9/23 - can only work 2 days a weekIn context ↗ | Mild |
| 10/23 | crash, stopped work, showered every three days, went outside once in 11 days10/23 - crash; stop work; shower once every 3 days; go outside once every 11 daysIn context ↗ | Severe |
| 11/23 | could eat from plastic containers again11/23 - ability to eat from plastic containers returnsIn context ↗ | Moderate |
| 12/23 | could eat handmade sandwiches again and shower every other day, still not working12/23 - ability to eat handmade sandwiches returns; showering every other day.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
10/22 - insomnia; inability to sleep at night
In context ↗ - Hair loss
12/22 - hair loss begins
In context ↗