Miruvor
ME/CFS Severe → full recoveryIll for 5 yearsBenefit faded or relapsed

My recovery story

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
5 years
Published
Dec 2010

Summary

Ian says a specialist identified necrotic "cavitation" lesions in his jawbone and that surgical removal eliminated his years-long feeling of being "chronically poisoned," resolving most CFS symptoms. The first surgery's benefit faded months later when the surgical site healed over, and a second surgery was needed before the improvement held; other posters in the thread debate whether his presentation was really ME/CFS. He references the specialist/clinic by name.

Read it in their words

forums.phoenixrising.me — this page sells a treatment, program or service.

What they credit

Credits Surgery & structural, PDE5 inhibitors (sildenafil, tadalafil).

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