ME/CFS
Outcome unclear
ME/CFS and very medication-sensitive: a week in bed after a tiny dose
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Sep 2026
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user in r/cfs who is extremely sensitive to medications started at 0.05 mg. At week two they thought they were magically better and crashed back into bed for a week. They now advise holding each dose for two to three weeks and logging mood, energy, food and side effects. Their current level of function is not stated.
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What they tried
Also tried
Their words about each treatment
- LDA · Helped
i started at 0.05mg ... thought i was magically better at week 2 and crashed myself right back into bed for a week
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| week 2 on low-dose Abilify | felt dramatically better shortly after starting low-dose Abilifythought i was magically better at week 2In context ↗ | Not stated | Low-dose Abilify / aripiprazole |
| week 2 on low-dose Abilify | crashed back into bed for a week after ramping up activity too soonthought i was magically better at week 2 and crashed myself right back into bed for a weekIn context ↗ | Severe | |
| 2026-09-29 | advising another patient on low-dose Abilify dosing and trackingi started at 0.05mg but i'm also stupidly sensitive to medsIn context ↗ | Not stated |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
thought i was magically better at week 2 and crashed myself right back into bed for a week
In context ↗