The Temporary ME/CFS and Fibromyalgia Recovery Stories - What Can They Tell Us?
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 15 years
- Published
- Jan 2020
Summary
She received Myers' cocktail IV infusions as one of dozens of treatments tried, alongside things like LDN, CBD oil, and hormone therapy, with no specific dose or duration recorded. She had been ill with ME/CFS, fibromyalgia, and POTS for over fifteen years, functioning at a consistent 3-4 out of 10 capacity. Myers' cocktail was not among the few interventions she credited with meaningful benefit; only hormone replacement therapy, sleep medication, and magnesium with stretching helped her. Her one period of real improvement, a three-week remission of POTS and partial ME/CFS relief, was triggered by an unrelated spinal tap, not the Myers' cocktail. No lasting improvement or relapse tied to Myers' cocktail itself is reported, since it produced no discernible effect either way.
What they credit
Credits Low-dose naltrexone, Selenium, iodine, minerals.
Symptoms mentioned
Symptoms: POTS & dysautonomia, Pain & fibromyalgia.
Similar stories
-
Blood and circulation
Combined having a problem tooth pulled with a long-running Linus Pauling-style protocol for peripheral artery disease, Ayurvedic remedies, infrared light therapy, a course of 32 magnesium-sulfate infusions, and low-dose naltrexone above 2mg per day. Had PAD…
-
GREAT Tips to improve (6 years experience)
Six years in, this poster describes a partial turnaround in energy timing and sleep - waking naturally without an alarm - after combining a supplement stack with a self-imposed "dopamine challenge" restricting stimulation after 6pm. He's explicit this is "my…
-
Latested Updated Regimen
Built an elaborate daily/weekly amino-acid, vitamin, mineral and chelation regimen (sodium ascorbate and amino acids with every meal, weekly LDN, sublingual B12 forms, EDTA chelation, periodic Tindamax courses and liver flushes). An earlier version of this…
-
Has anyone achieved remission or recovery from treatment by any doctor?
Took 25mg of spironolactone plus 4.5mg of low-dose naltrexone (LDN), while already on physiologic cortisol replacement for non-functioning adrenals, following the approach from the Campo and Taylor 2021 clinical trial. The page does not state how long they…