ME/CFS
No benefit
Chronically heavy, tired eyes with ME/CFS; too early to say on LDN, therapy and Botox
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Feb 2024
In their words
- Condition: ME/CFS
I have very similar issues
In context ↗ - Now: No benefit
I’m in the early stages & still titrating up, hard to definitively say whether or not it’s helping yet.
In context ↗
Summary
A Reddit user in r/cfs described chronically heavy, fatigued eyes that make them tired, with tension spreading into the forehead; only resting their eyes helped. A childhood “lazy eye” (small angle strabismus) was confirmed in 2023 and they were referred to a neuro-ophthalmologist. By February 2024 they were titrating low-dose naltrexone and had started talk therapy, and were going in for Botox for facial tension and headaches; too early to say if any helped.
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What they tried
Also tried
resting my eyes· Helpedlow-dose naltrexone· Not saidtalk therapy· Not saidBotox· Not saidPrism glasses· Not said
Their words about each treatment
- resting my eyes · Helped
The only thing that helps alleviate my symptoms is resting my eyes (by letting them go out of focus) for several hours.
In context ↗ - low-dose naltrexone · Not said
I’m in the early stages & still titrating up, hard to definitively say whether or not it’s helping yet.
In context ↗ - talk therapy · Not said
talk therapy (some of my muscle tension seems to be related to repressed emotions)
In context ↗ - Botox · Not said
today I’m going in for Botox. The Botox is hopefully going to help alleviate my chronic facial tension & headaches, remains to be seen.
In context ↗ - Prism glasses · Not said
The only solution offered to me on that front was Prism glasses & I don’t tolerate glasses very well!
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | CFS with chronic, heavy eye fatigue and forehead tensionboth of my eyes are chronically fatigued & heavy, which in turn makes me tiredIn context ↗ |
| 2023-08-19 | lazy eye confirmed, referred to neuro-ophthalmologist; resting eyes is the only reliefThe only thing that helps alleviate my symptoms is resting my eyes (by letting them go out of focus) for several hours.In context ↗ |
| 2024-02-02 | titrating low-dose naltrexone, started talk therapy and had Botox; too early to tellI’m in the early stages & still titrating up, hard to definitively say whether or not it’s helping yet.In context ↗ |
Adverse events
- Prism glasses“The only solution offered to me on that front was Prism glasses & I don’t tolerate glasses very well!” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Vision problems
both of my eyes are chronically fatigued & heavy
In context ↗ - Headaches & migraine
my chronic facial tension & headaches
In context ↗ - Sleep problems
Even REM sleep drains my eye muscles
In context ↗ - Muscle weakness
there’s more to the muscle fatigue than that
In context ↗